Little Man’s Lip Tie release was Thursday afternoon, and let me tell you we noticed a stark difference in his temperament right away. We had changed something on him and hurt him, he showed his displeasure by being one angry baby for the next 3 days. Even though he could now take a bottle things were still difficult and we were still trying to learn to latch with no such luck.
Monday morning we were back at the Pediatrician for his two week checkup, even though he was above his birthweight at 8lb5oz she was yet again unhappy with his weight gain and shared her displeasure in the most formula advocate of ways.😑(for anyone that doesn’t know, general rule of thumb is babies should be back at their birth weight between 10-14days-here we are at day 14 2 oz above birthweight🙄) While she shared her disapproval, I countered with our Dr debacle and she apologized for our experience but thanked her for sharing what happened because she’d “never heard that” about our local ENT. With another weigh in appointment scheduled for Thursday I left the pediatrician yet again frustrated.
Luckily during my pregnancy they started a local chapter of Le Lech League and it just so happened there was a meeting that night where an awesome leader and fellow members let me hijack a majority of the meeting to problem solve for my guy even working with us one on one at the end of the meeting to see where he was at with his latch, give us pointers and suggest some different holds based on what had worked for them. I left with lots of tips, a promise of more to come via email with s tentative followup one on one should we need it, a new book and a renewed faith that I was in fact doing everything in my power to give my guy the best.
The meeting had gone great and we stopped to see Daddy at the station on the way home which kept us out later than I expected; I had run out of pumped breast milk and was a little panicked about the potential turn our evening was about to take. It was 8pm and little man was already showing signs of being hungry through his drowsiness and I had a choice to make: do I try again right now or start pumping and hope he goes back to sleep while I do. Not expecting anything different than the angry head turning I got at the meeting I tried again to get little man to latch, success! He latched like s champ and stayed there for an entire feeding! Cody was at the firehouse studying for his big test so he just got a “success!” Text and we had a mini celebration.
It was officially after the 4th which meant the IBLC should be back in town, we called the hospital first thing Monday morning and were told that she was only there Tuesday through Thursday but I could talk to a different LC on staff-they patched me through I explained what was going on and the help we were looking for and yet again was told “I don’t have experience with that sorry I can’t help.” So we called the number given to us ( IBLC’s cell phone) and left a message. She called back and left her own voicemail in which she said I could text her a time and day that worked for us but that she was at the hospital from 10-2. So we made a plan for Tuesday at 1245. She had something come up and that appointment was cancelled and rescheduled for the same time Wednesday. At this point we’ve latched and nursed about six times! Which is wonderful! But it was all on one side and I was starting to be in a world of pain.
We arrive at the appointment with lots of questions post lip tie correction trying to establish our new found breast feeding ability with a proper latch and good habits. The rules at the hospital now say you have to go to security to get a badge then come back to Labor and Delivery to be seen, we had to park behind the providers building go all the way down to the security desk in the ER and back to the halfway point where labor and delivery is, by the time we get there little man is snug in his ring sling and none to pleased when we’re in the Lactation Room and he must be removed from his cocoon. In sharing his displeasure he opens his mouth wide and lets out a wail. It’s in those first 30 seconds we’re in the room the IBLC says “oh did they say when they were going to correct his posterior tongue tie?” 🤦🏼♀️
Cue: Internal excoriating sigh, face palm and frustrated scream.
She works with us on latching, asking questions about what we were experiencing, as I detailed what I was seeing during his feedings she said that everything we were dealing with was most likely a result of his tongue tie; explaining that a lip tie is almost always accompanied by a tongue tie but a tongue tie doesn’t necessarily mean that there is a lip tie. After some time she gives us some provider information for a Dr who can fix this tie and the next part of recruiting help for my guy has officially started.
I go home and do some research on ties, the list of symptoms I find is a stumbling list of what I’m seeing every day with my guy.
◦ Clicks when eating, swallows very loudly
◦ Spits milk out the corners of his mouth
◦ Sputters and chokes while eating (both at breast and bottle)
◦ While nursing often falls asleep quickly or takes several “breaks” while latched (like it’s an extensive effort to eat)
◦ Nipples raw, cracked, and bleeding (misshapen when releases latch)
◦ Gassy/colicky (cut dairy and still that way)
◦ Nipple shields hurt too as he just ends up crushing nipple in the silicone
◦ Short naps, not sleeping peacefully (2-2.5 hrs is a good stretch)
◦ Gets Hiccups frequently
◦ Constantly wants to suck on things, his hands,
After doing some research of correction methods I discovered that there is a national list of preferred providers who correct tongue and lip ties. We found two in Columbia, I looked more into each practice and chose the one I felt like was a better fit for us. They sound wonderful, there is an entire team of people to get little man the help he needs. A Lactation Consultant to see us prior to the procedure to see all the issues we’re having currently and to help us establish a good latch immediately post op, a body worker/chiropractor to make sure he is as loose as possible for the procedure so they can get to all the ties that need corrected, a speech pathologist to assess his mouth for potential future issues prior to the procedure and to insure those problems have been properly addressed with the correction. The expected healing time is six weeks, with the worst days being Days 3-4 and Day 7. They want to see us one week post op and six weeks post op, and ask that we work with a local networked body worker/chiropractor weekly.
I called the insurance company, apparently they think that a tongue tie correction is a cosmetic procedure. Even though it effects his ability to eat both currently and in the future (choking hazard once he starts solids), the development of his teeth and dental hygiene, the development of his muscles effecting his speech. They’re labeling it both cosmetic and dental saying that they don’t have to cover it because of both stipulations. So we have to pay for the procedure and all the follow ups and therapy upfront. The Doctor’s office is trying to code it for us to get a reimbursement but I am not hopeful.
Today is his correction, we start our 2.5 hr drive in a few hours to say this Mama is nervous is an understatement.
To be updated with procedure experience…
love and baby dust,